Prior to Noah’s diagnosis, the world of pediatric brain tumors was completely unknown to the Evans family. Now, after Noah’s battle, and 15 months since he went home to Heaven, one of the goals of the NoahBRAVE Foundation is to raise awareness of this devastating disease. Join us each day this month on our social media accounts as we hear from different people connected to Noah’s story share facts about Diffuse Midline Glioma (DIPG) brain tumors, and how you can be a part of the movement to help spread awareness, care for families facing this journey, and fund research for a cure. Show your support by wearing gray in May, reposting our video each day, and donating at NoahBRAVE.org

Meet the Grenfell Family

Kambria, "Kam" Grenfell, was a normal, fun, and adventurous 9 year old girl who loved gymnastics and running. The oldest of 3 children, Kambria started complaining of dizziness and experiencing gait issues in December 2020; she was diagnosed with DIPG right after Christmas. Kam was on the ONC 201 trial at the University of Michigan, and she fought with such grace and strength for 9 months. With every single symptom that came up, she was determined to not let it get in the way, and she would just find another way. Kambria beat DIPG September on 18, 2021, Noah's diagnosis day, when Jesus took her home with Him. Her family misses her everyday, but when her mom is having a hard day, she tries to remember the quote she wrote; "Don’t forget that life is tough, but God has you". Through your generosity, we have been able to come alongside the Grenfell family in their season of grief, and help pay for Kambria's funeral expenses.