NoahBRAVE Foundation

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Imagine being told you only have 6 to 12 months left with your child.

How would you want to spend it?

We partner with families to help give them the priceless gift of quality time together by easing the burden of life expenses.

We help with the following:

loss of wages
car payments
utilities
internet and phone
mortgages and rent
groceries and meals
house cleaning
travel expenses for clinical trials
medical bills
alternative therapies
counseling
funeral costs
bereavement care

When Noah was in the midst of his 16-month battle with terminal Diffuse Midline Glioma brain cancer, we turned to foundations for help with bills, groceries, and medical expenses. Because there is currently no earthly cure for Diffuse Midline Glioma brain tumors, Noah's treatment took us from our home hospital, Vanderbilt Children's in Nashville, TN, to the University of Michigan in Ann Arbor, and Duke University in Durham, NC, where the most promising trials at the time were being held. Noah's dad was a self-employed physical therapist, and because of the significance of Noah's diagnosis and treatment, he was unable to keep the doors of his office open during Noah's journey. We became fully reliant on the generosity of others to help us navigate the financial strain of Noah's battle with brain cancer.

Most of the foundations we connected with would offer assistance for one bill for one month, or a one-time lump sum to help with whatever we needed. While we were very thankful for that, the battle didn't last just one month, it lasted for 16. And those 16 months were full of the most exhausting emotional, spiritual, and physical battles as we researched, prayed, hoped, and pleaded for Noah's precious life to be sparred on this side of eternity.

We also learned through Noah's journey that the government only gives 4% of its yearly budget to pediatric cancer research, and an even smaller portion of that goes towards brain tumor research, which is the leading cause of pediatric cancer deaths. The trials Noah enrolled in at the University of Michigan and Duke University were funded by different foundations, namely the ChadTough Defeat DIPG Foundation and the Pediatric Brain Tumor Foundation. These, along with other foundations, like Storm the Heavens, Tough2Gether, Live Grays Way, and Arms Wide Open, are providing the funds necessary to research better treatment options for kids being diagnosed with this terrible disease. It is our honor to partner with such organizations to help fund research and continue advocating for change on behalf of our children.

It was through our experience that God began to stir in our hearts the idea for the NoahBRAVE Foundation. We would exist to help families in their journeys with brain tumors not once, but through the entire battle from diagnosis to healing and beyond. We would also help support research for a cure since pediatric brain tumor research is way underfunded and there is currently no known cure and most doctors tell parents upon diagnosis, “I'm sorry, but there's not much we can do. They have 6-12 months. Go home and make memories.”

Your donations go directly into the hands of families with children fighting brain tumors, namely Diffuse Midline Gliomas, and funding research for a cure of terminal brain cancer.

Hear from our Families

"With the help of NoahBRAVE, we were able to get our 5-year-old daughter, Kenzie, life-flighted home to North Carolina from California to spend her final days surrounded by family in the comfort of her own home. During these difficult times when you are worried about the well-being of your child, anything that can be taken off your plate financially is a blessing. There is also a peace and comfort in the support they provide personally. Thank you NoahBRAVE!" - Meghan Scoggins, Kenzie's Mom

"When we first found out that my son had DIPG, our world stopped. There were so many doctor appointments, hospital visits, phone calls, therapy sessions and just getting from point A to point B. I couldn't even think straight and my only objective was to keep Joseph as happy and comfortable as possible. This isn't as easy as one would think, with bills and obligations that continue to come due. We were very fortunate to have the assistance of The NoahBRAVE Foundation. This group helped out my family tremendously. We were able to focus on Joseph's care and well-being without any added stress. The ability to spend even an extra few minutes with my son is priceless. We owe a huge debt of gratitude to NoahBRAVE. Thank you for making Joseph a priority and giving us the time to spend with him by taking care of other things for us. And for continuing to help us while we are still grieving. I don't know what I would do without the help that I still need." - Luigina Capi, Joseph's Mom

"I want to give a special thanks to NoahBRAVE from the bottom of my heart. When my daughter passed away, I didn’t have anything left in my bank account. All my money was spent trying to save her life. NoahBRAVE came through like a hero and carried me through the toughest moment of my life. They even helped me pick up the pieces until I could fully function on my own. I don’t have enough words to express my sincere gratitude towards this organization. NoahBRAVE definitely makes this hurting world a better place. Thank you NoahBRAVE." - Rita Bissainthe, Adelle’s Mom

"The NoahBRAVE Foundation has been here for our family during the most difficult time of our lives. Our son, Thomas, was diagnosed at 19 with DIPG/DMG causing him to lose his abilities for the last 6-months of his life. He battled for 17-months altogether, which he endured courageously.

At this point he needed more hands-on care, so my husband and I embraced it fully, caring for him and we did so with with great honor. My husband stopped working, which totally impacted our finances. Life had become uncertain. Our focus was our son. He had a strong will to live and so we honored his wishes all along his journey.

The kindness and generosity of the NoahBRAVE Foundation has truly made all the difference. With their support, paying our mortgage over several months, it took that financial burden off our shoulders, which was a tremendous relief. Words cannot express how grateful we are. We are forever thankful to the NoahBRAVE Foundation." - Michelle Davis, Thomas' Mom

"It is difficult to figure out how to correctly say thank you to NoahBRAVE for your kindness and support. Thank you for sharing about Noah, and for all the encouragement and kindness. Your help with our mortgage payment eased some worries and not only helped with medical expenses, but allowed us to say "yes!" to our child's request for a new baseball glove. You've directly supported us in our hopes to travel this journey holding onto joy and love as we do." - Parent of DIPG/DMG Child

CAR T-Cell Therapy

The NoahBRAVE Foundation helped fund the expansion of the CAR T-Cell therapy trial at Stanford University. This trial is showing to be one of the more promising trials to treat Diffuse Midline Glioma/DIPG brain tumors.

CAR T-Cell therapy is a type of immunotherapy which increases the capacity of immune cells to fight the disease. A type of white blood cell, called a T-Cell, is collected and genetically modified to develop a chimeric antigen receptor, or CAR. Those CARs latch onto a specific antigen on the surface of the cancer cell to disrupt and destroy it.

Our help with funding this trial allows access for more children with terminal Diffuse Midline Glioma/DIPG brain tumors to be treated with hope for prolonged life and ultimately finding a cure.

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